| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Black Women's Health Imperative
International. 15 chapters. Founded 1981. Grassroots organization aimed at improving the health of Black women by providing wellness education, services, self-help group development, leadership development, health information and advocacy. Assists in the development of new local affiliate groups. Self-help brochure, quarterly newsletter and annual news magazine. Membership dues vary.
Write:
Black Women's Health Imperative
1420 K St. NW, Ste. 1000, 10th Floor
Washington, DC 20005
Voice: 202-548-4000
Fax: 202-543-9743
Website: http://www.blackwomenshealth.org
E-mail: nbwhp@nbwhp.org
Verified: 10/16/2008
International Premature Ovarian Failure Foundation
National network. 8 affiliated groups. Founded 1995. Mutual support for women who have prematurely entered menopause. Phone support, literature, information and referrals. Assistance in starting groups.
Write:
International Premature Ovarian Failure Foundation
P.O. Box 23643
c/o Catherine Corp
Alexandria, VA 22034
Voice: 703-913-4787
Website: http://www.pofsupport.org
E-mail: info@pofsupport.org
Verified: 10/16/2008
Power Surge
Online. Provides support and information for women going through menopause. Online interactive chats, message boards, newsletters and weekly gab sessions. Some pages require flash.
Website: http://power-surge.com
Verified: 10/16/2008
iVillage Health Message Boards
Online. Provides various message boards concerning all aspects of health, including menopause, breast cancer, addictions, allergies, arthritis, heart, immune disorders, vision, disabilities, diabetes, caregivers, brain disorders, infertility, respiratory, mental health, pain, parenting, thyroid and medications. Mailing lists, message boards, chats and newsletters.
Website: http://www.ivillage.com/boards
Verified: 10/20/2008
Mullerian Anomalies of the Uterus
Online. Support and information for those with mullerian anomalies of the uterus such as bicornuate, septate, unicornauate, hypoplastic and didelphys uteria. Weekly chat, e-mail list and message board.
Website: http://health.groups.yahoo.com/group/MullerianAnomalies/
Verified: 10/20/2008
Postpartum Hemorrhage Survivors
Online. E-mail list for women who are supporting each other after a postpartum hemorrhage and hysterectomy.
Website: http://health.groups.yahoo.com/group/pph-survivors
Verified: 10/22/2008
DES Action
National. Founded 1983. Mutual support and education for DES-exposed women, with a special focus on DES cancer issues. Provides research advocacy and medical/legal resources.
Write:
DES Action
2925 Garber St.
Berkeley, CA 94705
Voice: 1-800-337-9288
Website: http://descancer.org
Verified: 10/14/2008
Cyster Connection
Online. 531 members. Support for women with polycystic ovarian syndrome (PCOS), a condition in which ovaries create an abundance of follicles each month without producing an egg. PCOS usually goes hand-in-hand with insulin resistance. It is also the most common cause of infertility among women in the United States.
Website: http://pcostcc.proboards83.com
Verified: 9/9/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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