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Stevens Johnson Syndrome Foundation
International network. Founded 1995. Provides to the public and medical communities information on adverse allergic drug reactions. Aim is to quicken diagnoses to avoid permanent damage. Literature, phone support, chatroom support group, moderated discussion group, information and referrals.
Write:
Stevens Johnson Syndrome
P.O. Box 350333
Westminster, CO 80035
Voice: 303-635-1241
Website: http://www.sjsupport.org
E-mail: sjsupport@aol.com
Verified: 9/26/2008
Aniridia Foundation International
International. Founded 2002. Offers support, data studies, research and education to the public, medical community and members. Provides information, referrals, literature, newsletter, phone support, pen pals and conferences. Online e-mail support and chatrooms. Also supports those with low vision or blindness who experience the same associated conditions such as glaucoma, corneal disease and cataracts. OPTIC program helps those with Stevens-Johnson syndrome, chemical and thermal burns to the eyes and other corneal dystrophy patients.
Write:
Aniridia Foundation International
c/o Hamilton Eye Institute
930 Madison Ave., Suite 314
Memphis, TN 38163
Voice: 901-448-2380
Fax: 901-448-2382
Website: http://www.aniridia.net
E-mail: info@aniridia.net
Verified: 10/13/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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