Cystic Fibrosis - Other Places To Get Help

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Other Places To Get Help

Online Resource

KidsHealth for Parents
Nemours Foundation
Web Address: http://kidshealth.org/parent

This organization provides a wide range of information about children's health, from allergies to normal growth and development. This Web site offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can also sign up to receive weekly emails about your area of interest.


Organizations

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
Phone: 1-800-FIGHT CF (1-800-344-4823)
(301) 951-4422
Fax: (301) 951-6378
E-mail: info@cff.org
Web Address: www.cff.org

This organization coordinates, supports, and accredits cystic fibrosis centers nationwide and provides funds and support for research.


Cystic Fibrosis Research
Bayside Business Plaza
2672 Bayshore Parkway
Suite 520
Mountain View, CA 94043
Phone: (650) 404-9975
Fax: (650) 404-9981
Web Address: www.cfri.org

This organization funds research, provides educational and personal support, and spreads awareness about the genetic condition of cystic fibrosis. It also offers information and referrals to families living with cystic fibrosis.


Cystic Fibrosis Worldwide
210 Park Avenue
Suite 267
Worcester, MA 01609
Phone: (508) 733-6120
E-mail: info@cfww.org
Web Address: www.iacfa.org

Cystic Fibrosis Worldwide (CFWW) promotes access to appropriate care and education to people around the world who have cystic fibrosis or who know someone with cystic fibrosis. CFWW works to provide a means to exchange information, research, and support the search for a cure. The Web site lists a variety of links to other cystic fibrosis organizations.


Last Updated: 06/26/2007

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