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Association For Glycogen Storage Disease
U.S. and Canadian network. 3 affiliated groups. Founded 1979. Mutual support and information sharing among parents of children and patients with Glycogen Storage disease. Fosters communication between parents, patients and professionals, creates public awareness and encourages research. Offers GSDnet support group via e-mail. Newsletter, phone support and conference.
Assn. for Glycogen Storage Disease
Write:
P.O. Box 896
Durant, IA 52747
Voice: 563-785-6038 (voice/fax)
Website: http://www.agsdus.org
E-mail: maryc@agsdus.org
Verified: 9/28/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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