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The Barth Syndrome Foundation
International. Founded 2000. (MULTILINGUAL) Offers support to affected individuals and their families. Provides information, support awareness, medical database, diagnostic and clinical descriptions, fact sheets, moderated listserv information available on website, research, outreach, newsletter, referrals, pen pals and biennial conference. Peer-to-peer mentoring program.
Write:
Barth Syndrome Fdn., Inc
PO Box 974
Perry, FL 32348
Voice: 850-223-1128
Website: http://www.barthsyndrome.org
Verified: 10/1/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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