Other Places To Get Help
Organizations
| AboutFace USA | |
| P.O. Box 75112 | |
| Las Vegas, NV 89136 | |
| Phone: | 1-888-486-1209 (702) 769-9264 |
| Fax: | (702) 341-5351 |
| E-mail: | info@aboutfaceusa.org |
| Web Address: | www.aboutfaceusa.org |
AboutFace is a nonprofit international organization that provides information, emotional support, and educational programs to people who have a facial disfigurement and to their families. They have information on cleft palate and cleft lip, including how to feed a baby who has these conditions. | |
| Cleft Palate Foundation and American Cleft Palate-Craniofacial Association | |
| 1504 East Franklin Street | |
| Suite 102 | |
| Chapel Hill, NC 27514-2820 | |
| Phone: | 1-800-24-CLEFT (1-800-242-5338) (919) 933-9044 |
| E-mail: | info@cleftline.org |
| Web Address: | www.cleftline.org |
|
The Cleft Palate Foundation (CPF) is a nonprofit organization that provides information to parents of newborns with clefts and other craniofacial birth defects and to the health professionals who deliver and treat these infants. The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health professionals in over 40 countries who are involved in treatment and/or research of cleft lip, cleft palate, and other craniofacial conditions. Callers to the toll-free phone number can get medical information as well as resources to find regional parent-patient support groups. | |
| La Leche League International (LLLI) | |
| P.O. Box 4079 | |
| Schaumburg, IL 60168-4079 | |
| Phone: | 1-800-LA-LECHE (1-800-525-3243) (847) 519-7730 |
| Fax: | (847) 969-0460 |
| TDD: | (847) 592-7570 |
| Web Address: | www.llli.org |
La Leche League International (LLLI) offers information and encouragement—mainly through personal help—to all mothers who want to breast-feed their babies. It also offers support and information about breast-feeding babies with various disabilities, such as cleft lip or cleft palate. Call for information about a chapter in your area. | |
| March of Dimes | |
| 1275 Mamaroneck Avenue | |
| White Plains, NY 10605 | |
| Phone: | (914) 997-4488 |
| Web Address: | www.marchofdimes.com |
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents. | |
| Thousand Smiles Foundation | |
| P.O. Box 606 | |
| Bonita, CA 91908-0606 | |
| Phone: | (619) 470-2885 |
| Fax: | (619) 267-4553 |
| E-mail: | information@thousandsmiles.org |
| Web Address: | www.thousandsmiles.org |
This Rotary International organization provides information and resources on cleft lip, cleft palate, and dental services. A special part of its mission is providing free cleft lip and cleft palate correction and dental services to needy children in Mexico and other developing countries. | |
| Wide Smiles | |
| P.O. Box 5153 | |
| Stockton, CA 95205-0153 | |
| Phone: | (209) 942-2812 |
| Fax: | (209) 464-1497 |
| E-mail: | josmiles@yahoo.com |
| Web Address: | www.widesmiles.org |
This organization offers materials, online chat groups, and other resources for parents of children with cleft lip and cleft palate. | |
