| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
NIH Osteoporosis and Related Bone Diseases Resource Center
Provides written information to patients, professionals and the public. Resources and information on metabolic bone diseases such as osteoporosis, Paget's disease, osteogenesis imperfecta and primary hyperparathyroidism. Annotated bibliography on current research available to professionals.
Voice: 1-800-624-2663
TDD: 202-466-4315
Website: http://www.osteo.org
E-mail: niamsboneinfo@mail.nih.gov
Verified: 10/21/2008
National Institute of Diabetes and Digestive and Kidney Diseases
Provides referrals and literature on a broad range of subjects concerning diabetes, digestive disorders, kidney disease, hematologic diseases, urologic disorders, metabolic and endocrine disorders.
Voice: 1-800-891-5390 or 1-800-860-8747 or 1-800-891-5359
Website: http://www.niddk.nih.gov
E-mail: nkudic@info.niddk.nih.gov
Verified: 10/16/2008
World Life Foundation
Provides support, research, information and referrals for persons interested in rare metabolic disorders. Provides air transportation for ambulatory patients who need non-emergency treatment.
Voice: 1-800-289-5433
Verified: 10/21/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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