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The Romberg's Connection
Online. Founded 1997. Offers mutual support for persons, and their families, affected by Parry Romberg's syndrome (aka progressive facial hemiatrophy or Romberg's syndrome). Parry-Romberg syndrome is a rare disorder causing atrophy to usually one half of the face.
Website: http://www.geocities.com/HotSprings/1018/
E-mail: rombergs@hotmail.com
Verified: 10/10/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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