Important
It is possible that the main title of the report Syringobulbiais not the name you expected.
General Discussion
Syringobulbia is a neurological disorder characterized by a fluid-filled cavity (syrinx) within the spinal cord that extends to involve the brainstem (medulla). It usually occurs as a slit-like gap within the lower brainstem that may affect one or more of the cranial nerves, causing facial palsies of various kinds. In addition, sensory and motor nerve pathways may be affected by compression and/or interruption. This disorder is intimately associated with syringomyelia, in which the syrinx is limited to the spinal cord, and to the Chiari I malformation.
Resources
American Syringomyelia Alliance Project, Inc. (ASAP)
300 N. Green Street, Suite 412
Longview, TX 75601
Tel: (903)236-7079
Fax: (903)757-7456
Tel: (800)272-7282
Email: info@asap.org
Internet: http://www.asap.org
National Spinal Cord Injury Association
6701 Democracy
Suite 300-9
Bethesda, MD 20817
USA
Tel: 3012144006
Fax: 3018819817
Tel: 8009629629
Email: info@spinalcord.org
Internet: http://www.spinalcord.org
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda, MD 20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Email: braininfo@ninds.nih.gov
Internet: http://www.ninds.nih.gov/
American Spinal Injury Association
345 East Superior
Room 1436
Chicago, IL 60611
Tel: (312)238-6207
Fax: (312)238-0869
Email: mars@northwestern.edu
World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square, PA 19073
Tel: (610)353-4737
Email: internautbhm2@comcast.net
Internet: http://www.wacma.com
Christopher S. Burton Syringomyelia Foundation, Inc.
3701 NW 5th Ave.
Fort Lauderdale, FL 33309
Tel: (954)727-5137
Fax: (954)636-2409
Email: info@thesmfoundation.org
Internet: http://www.theSMfoundation.org and http://www.SyringomyeliaFoundation.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 9/23/2007
Copyright 1987, 1989, 1998, 1999, 2006, 2007National Organization for Rare Disorders, Inc.
