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The Myositis Association
International network. 65 groups. Founded 1993. Dedicated to serving those with polymyositis, dermatomyositis, juvenile myositis and inclusion body myositis. Provides education and support. Also serves as a clearinghouse between patients and scientists. Newsletter, research reviews, literature and phone support. Area meetings available as well as annual conference. Guidelines available for starting similar groups. Fundraising for research. Dues $35/yr.
Write:
Myositis Association of America
1233 20th St., NW #402
Washington, DC 20036
Voice: 202-887-0088
Fax: 202-466-8940
Website: http://www.myositis.org
E-mail: tma@myositis.org
Verified: 10/10/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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