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The Marden-Walker Syndrome Organization
National network. Founded 1998.
Mutual support and education for families affected by Marden-Walker syndrome. Provides parent-to-parent network, and physician-to-physician dialogue. Information referrals, newsletter, phone support, pen pals, literature, and advocacy.
WRITE:
Marden-Walker Family Support Group
P.O. Box 239
New Haven, KY 40051
CALL: 502-549-3028 Ann Marie Stearns
E-MAIL: stearnsky@yahoo.com
VERIFIED: 4/28/2004
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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