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NBIA Disorders Association
International network. Founded 1996. Provides emotional support to families affected by Neurodegeration with Brain Iron Accumulation - a rare progressive neurological disorder resulting in iron deposits in the brain that causes loss of muscle control. Formerly Hallervorden-Spatz syndrome. Educates public on neurodegenerations with brain iron accumulation, supports and monitors research through grants and BioBank. Newsletter, literature, bi-annual conferences, on-line listserv, family networking program and advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92109-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.NBIAdisorders.org
E-mail: info@NBIAdisorders.org
Verified: 10/8/2008
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