| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Ellis Van Creveld Support Group
International network. Founded 1997. Provides support and information for families affected by Ellis Van Creveld syndrome (aka chondroectodermal dysplasia), an extremely rare form of dwarfism. Networks families together for support. Literature, advocacy, phone support, information and referrals. Connects with medical community to find ways to save the lives of infants born with this genetic disorder.
Write:
Ellis Van Creveld Support Group
17 Bridlewood Trail
Honeoye Falls, NY 14472
Voice: 585-624-8277
E-mail: PattiMO44@aol.com
Verified: 10/14/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
