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Histiocytosis Association of America
International network. Founded 1985. Mutual support and information for parents and patients with this group of rare disorders. Includes Erdheim-Chester disease, sinus histiocytosis Rosai Dorfman, xanthogranuloma, hemophagocytic lymphohistiocytosis, pulmonary eosinophilic granuloma, histiocytosis and familial erythrophagocytic lymphohistiocytosis. Provides parent-patient directory to facilitate networking and communication. Funds research. Literature and pamphlets (some available in Spanish) and newsletter.
Histiocytosis Assoc. of America
Write:
332 N. Broadway
Pitman, NJ 08071
Voice: 856-589-6606 (Jeff Toughill)
Fax: 856-589-6614
Website: http://www.histio.org
E-mail: histiocyte@aol.com
Verified: 9/20/2007
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