| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
The Pull-thru Network
International network. Founded 1988. Support and information for the families with children born with anorectal, colorectal or urogenital disorder and any of the associated diseases. Disorders include cloaca, bladder exstrophy, imperforate anus, VATER/VACTERL association, anal stenosis, cloacal exstrophy and Hirschsprung's Disease. Maintains a database for personal networking. Quarterly magazine, online discussion group, weekly chat for members, phone support and literature. Dues $30/year - can be waived upon request.
Write:
Pull-thru Network
2312 Savoy St.
Hoover, AL 35226
Voice: 205-978-2930
Website: http://www.pullthrunetwork.org
E-mail: ptnmail@charter.net
Verified: 10/21/2008
Continence Restored Inc.
International. 8 affiliated groups. Founded 1984. Forum where persons with incontinence, their families and friends can express concerns and receive assistance. Disseminates information on bladder control. Phone support. Assistance in starting groups.
Write:
Continence Restored Inc.
407 Strawberry Hill Ave.
Stamford, CT 06902
Voice: 203-348-0601
E-mail: as4young@optonline.net
Verified: 10/1/2008
Simon Foundation for Continence
National. 500+ affiliated groups. Founded 1983. Support and advocacy for people suffering from incontinence. Quarterly newsletter, pen pals, books, videos and group development guidelines.
Write:
Simon Foundation for Continence
P.O. Box 835
Wilmette, IL 60091
Voice: 1-800-237-4666
Fax: 847-864-9758
Website: http://www.simonfoundation.org
E-mail: cbgartley@simonfoundation.org
Verified: 10/8/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
