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Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
National network. Founded 1996. Support and resource network for families coping with velo-cardio-facial syndrome (aka Shprintzen syndrome, 22q11 Deletion syndrome). Provides family programs, parent-to-parent networking, educational materials, newsletter and annual conference.
Write:
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
P.O. Box 874
Milltown, NJ 08850
Voice: 1-866-823-7335
Website: http://www.vcfsef.org
E-mail: info@vcfsef.org
Verified: 9/25/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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