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Proteus Syndrome Foundation
International network. Founded 1991. Provides education and support for families of children with Proteus syndrome. Supports research into cause and cure of this disorder. Newsletter, pen pals, literature and database of families. Fundraising.
Write:
Proteus Syndrome Foundation
4915 Dry Stone Drive
Colorado Springs, CO 80918
Voice: 719-375-3005 or 901-756-9375
Website: http://www.proteus-syndrome.org
E-mail: kimhoag01@comcast.net or jakebabs@aol.com
Verified: 9/29/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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