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Children's Tumor Foundation
(BILINGUAL) National. 50 chapters. Founded 1978. For patients with neurofibromatosis and their families. Promotes and supports research on the causes of, and cure for NF. Provides information, quarterly newsletter, assistance and education. Dues $40/year. Professional grants awarded for research.
Children's Tumor Foundation
Write:
95 Pine St., 16th Fl.
New York, NY 10005
Voice: 1-800-323-7938 or 212-344-6633
Fax: 212-747-0004
Website: http://www.ctf.org
E-mail: info@ctf.org
Verified: 10/29/2007
Neurofibromatosis, Inc.
National. 8 groups. Founded 1988. Dedicated to individuals and families affected by the neurofibromatoses (NF-1 and NF-2) through education, support, and clinical and research programs. Newsletter, networking, video, printed materials, phone support, information and referrals. Assistance in starting groups.
Write:
Neurofibromatosis, Inc.
P.O. Box 18246
Minneapolis, MN 55418
Voice: 301-918-4600 or 1-800-942-6825 (patient inquiries)
Fax: 301-918-0009
Website: http://www.nfinc.org
E-mail: NFInfo@nfinc.org
Verified: 10/27/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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