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Marinesco-Sjogren Syndrome Support Group
National network. Founded 2000. Support for families affected by Marinesco-Sjogren syndrome (MSS) a rare, genetic disorder characterized by ataxia, cataracts, small stature and retardation. Encourages research into the cause and cure. Information and referrals.
Write:
MSS Support Group
1640 Crystal View Circle
Newbury Park, CA 91320
Voice: 805-499-7410
Website: http://www.marinesco-sjogren.org
E-mail: mss@marinesco-sjogren.org
Verified: 10/13/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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