| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Langer-Giedion Syndrome Association
International network. Founded 1997.
Provides mutual support for families affected by Langer-Giedion syndrome (aka trichorhinophalangeal syndrome Type II) and TRPS Type I. Works to promote research. Matches families together for support. Newsletter, phone support, advocacy. Dues $20.
WRITE:
Langer-Giedion Syndrome Assn.
89 Ingham Ave.
Toronto, Ontario
Canada M4K 2W8
CALL: 416-465-3029 Louise Kinross
E-MAIL: lkinross@rogers.com
WEBSITE: http://www.lgsa.net
VERIFIED: 5/26/2004
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.