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DeBarsy Syndrome National Network
National network. Founded 1997.
Support and information sharing for parents of children with DeBarsy syndrome, a rare disorder. Pen pals, phone support, peer support and counseling.
WRITE:
DeBarsy Syndrome Nat'l Network
c/o Cheryl Dinne, Family Ties of Nevada
P.O. Box 50815
Sparks, NV 89435
CALL: 775-823-9500
E-MAIL: dcdinnell@mindspring.com
VERIFIED: 3/31/2003
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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