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National Niemann-Pick Disease Foundation, Inc.
International network. Founded 1992. Provides support for families affected by Niemann-Pick disease type A, B and C. Promotes and supports research. Provides newsletter, family directory, networking, family conference, phone support, information and referrals. Guidelines available to help start similar groups. Dues $20.
Write:
National Niemann-Pick Disease Fdn.
P.O. Box 49, 401B Madison Avenue
Ft. Atkinson, WI 53538
Voice: 920-563-0930
Fax: 920-563-0931
Website: http://www.nnpdf.org
E-mail: nnpdf@idcnet.com
Verified: 10/16/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.
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