| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
XLH Network
Online. Founded 1996. Volunteer organization offering support and information for individuals and families affected by X-linked hypophosphatemia (aka X-linked hypophosphatemic rickets, familial hypophosphatemic rickets or vitamin D resistant rickets). Also open to those affected by similar disorders including autosomal dominant hypophosphatemic rickets and tumor-induced osteomalacia. Open to interested professionals dedicated to understanding in terms of support, research and developing new treatments. Exchanges and disseminates information. Offers an online brochure and members listserv.
Write:
XLH Network
4562 Stoneledge Lane
c/o Joan Reed
Manlius, NY 13104
Website: http://www.xlhnetwork.org
E-mail: joan.reed@xlhnetwork.org
Verified: 4/30/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.
© 1995-2007, Healthwise, Incorporated, P.O. Box 1989, Boise, ID 83701. ALL RIGHTS RESERVED.
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information. For more information, click here. Privacy Policy. How this information was developed.