Personal stories about care options at the end of life

These stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions.

Tully, age 83: When I was recently diagnosed with cancer of the lung, my doctor discussed treatment options with me and my family. The tumor in my lung cannot be surgically removed. Chemotherapy may prolong my life somewhat, but I don't want to risk the side effects associated with these medications. I have lived a long, full life and I want to die comfortably at home with my family. I want to remain active as long as possible. I am willing to allow hospice to help my family care for me when I need additional help.

Mia, age 32: About a year ago I was diagnosed with acute leukemia. I went into remission shortly after I started chemotherapy. Unfortunately, this remission was only brief, and I am back on chemotherapy and radiation therapy. I have small children at home and want to see them grow. My doctor has informed me that I may need to try other forms of treatment, such as a bone marrow transplant. I am willing to pursue treatment that may cure my illness. If I develop complications, I want to receive any treatment that would keep me alive. I am not ready to give up.

Marion, age 39: I have had AIDS for 3 years. I have taken many medications, but I am now developing frequent infections that do not respond to the medications. I have spoken to my partner, family, friends, and doctor and do not want to receive CPR or be placed on a ventilator if I stop breathing. I don't feel comfortable dying at home because I am concerned about the welfare of my partner. I have chosen to live at my home as long as I possibly can, then move to a hospice house in my hometown. This way, a hospice team can help manage my symptoms, and my partner and other family members can participate in my care.

Javier, age 54: I was just 33 when I had my first heart attack. My heart disease has progressed in spite of medications, bypass surgery, and lifestyle changes. Other than my heart disease, I'm pretty healthy. My remaining treatment option is a heart transplant. Without this, I am likely to die. Even after the heart transplant, I will need to take a lot of medications, continue my healthy lifestyle, and see my doctor often. I live a productive life and am willing to undergo heart transplant if it will prolong my life.